Update On My Granddaughter – Good News – Sort Of
I took my granddaughter to her appointment with her new psychiatrist yesterday. He is of the opinion that she was misdiagnosed with ADHD. During our short visit he saw two episodes of what is called “temporal lobe seizures”. That is when she just stared and became unconscious of her surroundings.
On research, this appears to be a common misdiagnosis. Many of the symptoms are the same. I researched it tonight and found that even her fits of uncontrollable inappropriate giggling are connected to “temporal lobe seizures.
He plans to monitor her and coordinate with the neurologist and ween her off of the ADHD meds.
I went to my neurologist today and saw a poster on the wall describing this same thing. What’s interesting is that my neurologist and I were talking about how they were using certain drugs to protect central nervous system nerves from damage in MS patients and how they related to treating temporal lobe disorders. One avenue of treatment that they’re researching is using low dose dextromethorphan (like in cough syrup) for some of these things. They’re hoping if clinical trials pay off, they’ll be able to avoid using morphine-type substances and use alternatives that have no danger of addiction or other complications.
From what my neuro said, they’re making great progress in this area of research. It’s very likely they’ll be able to help her in a big way now and in the near future.
I’m sorry to hear she’s having problems with this type of seizure, but I’m glad you’ve gained more insight into exactly what’s going on. I’m hoping this will lead you all down a path where you can get her seizure-free very soon! :love:
My brother-in law evil wife has something similar(she starts going into a stare then like not aware of her surroundings…same kind of seizures) and they have wonderful advanced treatments for this..shes doing great….My heart to your granddaughter…poor baby girl….I will keep her in my thoughts! :love: :love: :love: :love: :love:
Hoping the doc is on to something. Sending good wishes and thoughts.
My thoughts and prayers are with you and you granddaughter, John.
Both my sons were diagnosed ADHD and one couldn’t take the meds and the other I ended up taking him off them because he developed tics. Have you researched the side effects of the ADHD drug and seen if that’s why she was having the seizures? I hope she’ll be ok John, my heart goes out to you!